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- Children's PKU Network - - Organisation offering education and direct assistance. Includes details of projects, plus links to food suppliers.
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- National PKU News - - Organisation providing information and news to families and professionals. Includes general information about the condition, dietary advice, research, personal stories and support.
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- Pediatric Oncall - - In-depth look at Phenylketonuria (PKU). Includes symptoms, diagnosing, newborn screening, treatment and follow up.
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- PKU Exchange - - Offering a UK food database, exchange calculator, recipes, and articles. Includes a message board.
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- PKU-Info.org - - Provides general information, plus links to organisations, suppliers and mailing lists. Also includes a forum. [English and German.
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- Tuxes for Tia - - A fund raising event for PKU research on behalf of the Piziali Family Foundation for PKU. Learn about phenylketonuria.
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