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- Danielle's Website - - Personal story of a child who has the condition, Tuberous Sclerosis. Contains links and photos.
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- Kolten's Tuberous Sclerosis Page - - Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
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- Team Tamara - - Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
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- Tuberous Sclerosis - - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
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- Tuberous Sclerosis Alliance - - US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
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- Tuberous Sclerosis Association - - UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
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