Neorunner Web Directory - Marfan Syndrome - Health - Conditions and Diseases - Musculoskeletal Disorders - Connective Tissue

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Top: Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Connective_Tissue: Marfan_Syndrome:

See also:

Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome (31)
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Hypermobility Syndrome (18)

This category in other languages:

American Heart Association - Marfan's Syndrome - - Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.

Canadian Marfan Association - - Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.

Central Ohio Marfan Support Group - - Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.

A Diary about Marfan's - - Marfan's patients diary of the diseases events in her life. Includes a list of links.

Guide to Marfans Syndrome - - Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.

International Federation of Marfan Syndrome Organizations - - A global information center providing links to Organizations around the world.

Jeanette Navia's Marfan Life Website - - Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.

Life and Issues of Marfan's Syndrome - - Personal site by which describes the pathology and gives a bit of advice.

Living With Marfans - - This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

Marfan Association UK - - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

Marfan Support and Information - - Support group in New South Wales, Australia.

Marfan Syndrome - - Article from eMedicine.

Marfan Syndrome - - A Question-Answer format page of information.

Marfan Syndrome - - Comprehensive guide to this connective tissue disease.

Marfan Syndrome - - Online chapter from The Merck Manual of Medical Information.

Marfan Syndrome: Does Diet Play a Role - - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.

Marfan Syndrome Forum - - Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.

Marfan-List - - Information about an e-mail mailing list. Also includes links to other online support groups.

Marfans Research Foundation - - Irish charity with information on fund raising activities and the condition.

MFS Type 1 Fibrillin Gene - - A comprehensive site including major resources listed as well as genetic information.

The Mystery of Akhenaten: Genetics or Aesthetics? - - A history of the pharoah along with theories applied to what he may have had, including Marfan's.

National Marfan Foundation - - Providing accurate and timely information about the disorder to patients, family members and physicians.

Polish Marfan Association - - General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.

Questions and Answers about Marfan Syndrome - - From the National Institutes of Health.

Slovak Marfan Association - - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

South African Marfan Syndrome Organisation - - Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.

Sports and Marfan Syndrome - - Article on the risks of sports participation.

Swedish Marfan Association - - Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.

Theresa E. Pageau - A Memorial Tribute - - A tribute to a patient with this disease accompanied by information and links related to donating.

Univ. of Washington - Marfan Syndrome - - What the disease is and includes the impacts on daily life.

Yahoo! Support Group - - Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.

Usenet alt.support.marfan - news: - Google Groups

Marfan Syndrome - Health - Conditions and Diseases - Musculoskeletal Disorders - Connective Tissue - Marfan Syndrome

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