Shwachman Syndrome

See also:

• Health: Conditions and Diseases: Nutrition and Metabolism Disorders: Cholesterol and Other Fats  (48)
• Health: Conditions and Diseases: Rare Disorders  (113)

The CaF Directory - - A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.

Katie's Journey - - Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.

NORD: Shwachman Syndrome - - Offers a general discussion, the synonyms and further resources.

Shwachman Syndrome - - A mothers story to diagnose this disorder before a team of doctors could.

Shwachman-Diamond America - - Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.

Shwachman-Diamond Syndrome Family/Friends - - An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.

Shwachman-Diamond Syndrome International - - Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.