See also:
- The Andy Fund - - Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
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- The CaF Directory - - Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
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- Ectodermal Dysplasia Society - - Information about the organization as well as the ED condition. Includes links, news articles and contact details.
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- National Foundation for Ectodermal Dysplasia - - ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
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