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Organizations
- Boomer Esiason Foundation - - A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
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- Chicago Cystic Fibrosis Awareness Day - - Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.
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- Cochrane Cystic Fibrosis & Genetic Disorders Review Group - - An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
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- Cystic Fibrosis Australia - - Information about the organization and its aims and objectives, CF facts, events, links and contact details.
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- Cystic Fibrosis Foundation - - Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.
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- Cystic Fibrosis Services - - A subsidiary of the Cystic Fibrosis Foundation in the United States, and a national pharmacy that offers minimal-cost medications to individuals with the disease.
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- Cystic Fibrosis Trust - - National charity in the United Kingdom which funds research into the disease and provides information and support for patients and families.
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- Cystic Fibrosis Victoria Inc - - Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, event.
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- Cystic Fibrosis Worldwide - - International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association.
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- Elizabeth Nash Foundation - - Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis.
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- European Cystic Fibrosis Society - - ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosi.
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- European Cystic Fibrosis Thematic Network - - Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
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- The Genentech Endowment for Cystic Fibrosis - - An independent, non-profit endowment dedicated to expanding access to Pulmozyme® (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply.
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- I.C.F.M.A. - - A not-for-profit organization for increasing cystic fibrosis awareness.
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- Milan Foundation - - Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis. Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission.
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- New Jersey State Organization of Cystic Fibrosis - - NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q&A's, news, services offered and coming events.
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- Reaching Out Foundation - - Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
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- Victoria Chapter, Canadian Cystic Fibrosis Foundation - - The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis Foundation, works to provide a brighter future for every person born with cystic fibrosis. It assists in the quest to find a cure or control for the disease.
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- The Victoria Foundation - - Helps young adults with Cystic Fibrosis and assist parents in caring for their son or daughter at home, with the support of the Southampton CF adult team.
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