- SPOHNC is a self-help organization for patients. Located in Locust Valley, New York.- Heads Up - - UK charity aimed to fund research for head and neck cancer. Based at Radcliffe Infirmary, Oxford.
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- Joan's Fund - - The aims of the Joan Bisesi Fund for Head and Neck Oncology Research include raising awareness and raising money for a cure. Located in Columbus, Ohio.
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- Krysti.net: A Journal - - Details the personal experience with a rare tracheal cancer called adenoid cystic carcinoma.
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